SBAG's Wine Tasting Is Coming UpIf you haven't made a reservation, act now!
Take a break from your hectic schedule to enjoy an evening of fine red wines and Mediterranean antipasti at Café Lily in Decatur---and also show your support for the good works of the Spina Bifida Association of Georgia.
$50 per person
Thursday, April 27 at 7:00 pm
Café Lily
308 West Ponce de Leon Avenue
Decatur, GA 30033
For Reservations,
email Jim Okula at rsvp@spinabifidaga.org or
call 770.939.1044
Now, more than ever we need for you to join SBAG, renew your membership in SBAG, or make a tax deductible contribution. Please act now to help us help others.
Parents who are interested in involvement with the 2006 SBA Kids' Program, in June in Atlanta, please contact Judy Thibadeau, SBAG, 404-783-3374.
There are many ways to be involved, both in the planning and preparation and during the actual program. Your help is needed to make this program better than ever.
SBAG knows that many people are interested in Baby Noor and how she is doing. To learn more, go to our News Links section, where we have posted a number of links to stories about Baby Noor.
SBAG is concerned about the recent rash of denials to families who are trying to renew their annual waivers through the Katie Beckett Medicaid program. Right now, everyone affected or potentially affected should contact Pat Nobie with the Governor's Council on Developmental Disabilities by telephone at 404.657-7409.
Others you may wish to contact are your elected state representatives and Governor Sonny Perdue via the State of Georgia Web site (you can send him comments from this link) or by telephone at 404-656-1776. SBAG Membership Drive
If anyone knows of any persons in the Atlanta area or anywhere in Georgia for that matter, the SBAA would like our help verifying and contacting those folks. SBAA is attempting to assist Evacuees in anyway it can such as transmitting appropriate medical supplies.
According to the Atlanta Journal Constitution, a 32-year-old woman who has spina bifida, her husband, and a 3-year-old child arrived in Atlanta from Beaumont, TX. We are trying to this family and to let SBAA know as well.
If any of you know of the identity of this person, please contact Alex at SBAA by calling 1-202-944-3285, Ext. 11.
SBAG wants to hear from adults in Georgia who have spina bifida. We are looking into better ways to provide services and information for you. Please take a few minutes to fill out this survey and either email to sbag@bellsouth.net or mail it back to:
SBAG
1448 McLendon Drive,
Suite B,
Decatur, GA 30033.
SBAG is calling a general membership meeting on September 11, 2005 in Room B-53 in Egleston Hospital on Clifton Road next to the Emory University campus. All current members and any interested persons are invited to attend between 2:00 p.m and 4:00 p.m.
The SBAG Board would like to hear from the SBAG members and to personally discuss issues of common concern, such as health care, for both young and adults; your experiences with the SPARX program, which is currently under the Childrens Healthcare of Atlanta; and the 2006 national SBA conference to be held in Atlanta next June.
Please ask RSVP by e-mail to SBAG, phone call to
the office, or regular mail so we can be sure that we have a facility
to accommodate everyone.
FYI, B-53 is in basement of Egleston and can be accessed directly
from the parking lot. More information will be added later.
The Georgia ADA Exchange has just published its first electronic newsletter with plenty of interesting and helpful information on disability issues such as housing, dental care, emergency evacuations, learning disability evaluations, and accessibility. View the newsletter. Or call them at 770/451-2340 for a print copy.
Just Kids: A Family1s Guide to Disability Resources (published by Atlanta Parent Magazine) is available for free in public libraries, Toys R Us, Whole Foods, School Box, or call Melissa Dotson at 678/222-1902 or email her at mdotson@atlantaparent.com for a copy for $3 (postage and handling).
Children1s Medical Services provides programs for children with special health care needs. They assure that eligible children with chronic health conditions who are residents of the state of Georgia receive needed specialty medical care for children from birth until age 21.
Disabled Dealer Magazine Call 800/417-9697 or visit their web page for information on accessible vehicles, wheelchairs, ramps, etc.
A parent in Cobb County is organizing a social group for families of 4-8-year-old children with spina bifida. Call the SBAG office at 770.939.1044 for details.
Adults with spina bifida aged 48 years and older are the subject of a book being written. Call the SBAG office at 770.939.1044 for details.
A sibling research project is under way at Virginia Commonwealth University. For information about the project or about participating, contact Dr. K Bentley by email at mahayden@mail.vcu.edu or call 804.828-0453.
The Spina Bifida Association of Georgia is a nonprofit association whose mission is to promote the achievement of full potential for people born with spina bifida while emphasizing the prevention of this birth defect. The focus of SBAG is threefold:
Fostering inclusion and independence for people with spina bifida.
Preventing babies from being born with spina bifida.
Serving as a resource for families affected by spina bifida